Other organisations
The Neurological Alliance http://www.neural.org.uk/
The Neurological Alliance enables charities to work together to improve the quality of life of all those in the UK living with a neurological condition.
Brain & Spinalcord Organisation http://www.brainandspinalcord.org/
American organisation providing information for brain and spinal cord injury survivors sponsored by an American law firm.
NCEPOD www.ncepod.org.uk
We aim to review medical clinical practice and to make recommendations to improve the quality of the delivery of care. We do this by undertaking confidential surveys covering many different aspects of medical care and making recommendations for clinicians and management to implement.
National Patient Safety Agency (NPSA) www.npsa.nhs.uk
Through three divisions, the NPSA aim to lead and contribute to improved, safe patient care by informing, supporting and influencing healthcare organisations and individuals working in the health sector
Brake http://www.brake.org.uk/
Brake supports people who have been involved in motor vehicle accidents.
BrainHelp www.brainhelp.co.uk
Addressing the Challenges Faced as a Result of Brain Haemorrhage or Brain Injury for Sufferers Families and Carers
The National Outreach Forum http://www.norf.org.uk/
The National Outreach Forum is a non-profit making multi- professional interest group, that seeks to promote excellence in the care of critically and acutely unwell patients.
Macmillan Cancer Support http://www.macmillan.org.uk/Home.aspx
Macmillan Cancer Support is a charitable trust which provides support for patients with cancer and their carers. The Macmillan website has advice, local information and resources for patients, relatives, informal caregivers and healthcare professionals.
Marie Curie http://www.mariecurie.org.uk/
Marie curie provides care to people with cancer and other life-limiting illnesses along with support for their families. The charity is best known for its network of Marie Curie Nurses working in the community to provide end-of-life care for patients in their own homes.
Mind http://www.mind.org.uk/
Mind is a leading mental health charity with extensive local services in all parts of the UK. Mind offers resources and training for individuals and organisations with the aim of promoting good mental health.
CRUSE http://www.crusebereavementcare.org.uk/
CRUSE is a UK charity that provides support and resources for the bereaved.
Neuroanaesthesia Society of Great Britain and Ireland http://www.nasgbi.org.uk/
The First Specialist Anaesthetic Society: The Neuroanaesthesia Society of Great Britain and Ireland (NASGBI) evolved from The Neurosurgical Anaesthetists Travelling Club (NATC) founded in 1965.
This is an official web site of the society promoting its objective; "..the advancement of education for the public benefit in the science of neuroanaesthesia and neuro-intensive care.."
LTCA (Long-term conditions alliance) working for people with long-term conditions http://www.lmca.org.uk/
LTCA is the umbrella body for national voluntary organisations in the UK working to meet the needs of people with long-term health conditions.
Our Vision A world where people affected by long-term conditions have control over their lives and can live them to the full.
Our Mission To ensure people affected by long-term conditions have access to the services and support they need and can be active participants in determining their care.
Long-term (Neurological) Conditions NSF
The Long-term (Neurological) Conditions National Service Framework (NSF) was launched in March 2005. The NSF aims to transform the way health and social care services support people to live with long-term neurological conditions. Key themes are independent living, care planned around the needs and choices of the individual, easier, timely access to services and joint working across all agencies and disciplines involved. The principles of the NSF are also relevant to service development for other long-term conditions. This NSF is a key tool for delivering the government's strategy to support people with long-term conditions outlined in the White Paper Our health, our care, our say and the NHS Improvement Plan: Putting People at the Heart of Public Services. It applies to health and social services working with local agencies involved in supporting people to live independently, such as providers of transport, housing, employment, education, benefits and pensions - please click here for more information
Cochrane Neurological Network http://www.cochraneneuronet.org
DiPEX (Database of Individual Patient Experiences) http://www.dipex.org/
The DiPEX project is supported by the NHS and seeks to describe the patient experience using semi-structured interviews. The experiences of people who have experienced critical illness are available on the site including stroke and epilepsy.
